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DTSTAMP:20260426T202235Z
DTSTART:20261007T141500Z
DTEND:20261007T153000Z
SUMMARY:Whose genes are they? A discussion on genetic testing and human r
 ights
DESCRIPTION:This presentation explores the intersection of genetic testin
 g and human rights\, focusing on four key areas: (1) privacy\; (2) ethic
 s\; (3) rights to genetic material\; and (4) genetic selection. Issues f
 or discussion include:\n\n• legal protections for genetic privacy\, incl
 uding data protection laws and the right to privacy\, highlighting issue
 s such as consent\, confidentiality\, and the risk of genetic discrimina
 tion.\n\n• ownership and access to genetic material\, particularly in se
 nsitive situations such as death or divorce. The session will examine ho
 w the law addresses disputes over frozen genetic material\, the requirem
 ents for consent\, and relevant case law.\n\n• the ethical and legal imp
 lications of genetic selection\, including pre-implantation genetic diag
 nosis and gene editing. The session will consider the balance between in
 dividual rights\, such as the right to found a family and non-discrimina
 tion\, and broader societal interests.\n\nThe session concludes with an 
 overview of the challenges and future trends in this rapidly evolving ar
 ea\, inviting discussion on how best to protect human rights in the cont
 ext of advancing genetic technologies. \n
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