9th Annual IBA World Life Sciences Conference

31 May - 2 Jun 2023

Session information

Plenary session two - From primary to secondary use of health personal data, from open data to intellectual property investment protection: is privacy opposed to data valuation?

Description

How can we ethically and effectively share and value health data for both primary and secondary use? Join our panel of experts as they will explore the opportunities and challenges of leveraging health data to improve healthcare outcomes, drive innovation, and advance research. We’ll delve into key questions such as: How can we ensure data privacy and security while promoting data sharing? What are the ethical considerations around data ownership and informed consent? Which should be the boundaries between the processing of health data, privacy and the development of innovation in health? What are the concerns and challenges for the international transfer of data between the US and EU due to the shield, Data Governance Act and European data space? Don’t miss this discussion on the cutting edge of health data sharing and valuation.

Session / Workshop Chair(s)

Fabio Alonso Vieira Kestener & Vieira Advogados, São Paulo, Brazil
Cécile Théard-Jallu De Gaulle Fleurance, Paris, France; Co-Chair, Healthcare and Life Sciences Law Committee

Speakers

Scott Jones Johnson & Johnson, Washington, District of Columbia, USA
Kim Le Debevoise & Plimpton, San Francisco, California, USA
Samuli Simojoki Borenius Attorneys Ltd, Helsinki, Finland