IBA Annual Conference Copenhagen 2026

4 Oct - 9 Oct 2026

Session information

Whose genes are they? A discussion on genetic testing and human rights

Wednesday 7 October (1615 - 1730)

Committee(s)

Law and Individual Rights Section (Lead)
Family Law Committee
Healthcare and Life Sciences Law Committee

Description

This presentation explores the intersection of genetic testing and human rights, focusing on four key areas: (1) privacy; (2) ethics; (3) rights to genetic material; and (4) genetic selection. Issues for discussion include:

• legal protections for genetic privacy, including data protection laws and the right to privacy, highlighting issues such as consent, confidentiality, and the risk of genetic discrimination.

• ownership and access to genetic material, particularly in sensitive situations such as death or divorce. The session will examine how the law addresses disputes over frozen genetic material, the requirements for consent, and relevant case law.

• the ethical and legal implications of genetic selection, including pre-implantation genetic diagnosis and gene editing. The session will consider the balance between individual rights, such as the right to found a family and non-discrimination, and broader societal interests.

The session concludes with an overview of the challenges and future trends in this rapidly evolving area, inviting discussion on how best to protect human rights in the context of advancing genetic technologies.